Initial Project Information: G7-MARGRITE


	Updated: Jun 3, 97
G7-MARGRITE

Marrow graft

[ Coordinator(s) ] [ Participants ] [ Project Objectives, ... ] [ Other Characteristics ]

Project Nr:	G7-78970	Group: II	Project Duration: 30 months
Key words:
Category:	Bone marrow transplant bank interoperability
Summary:	On line update and access to bone marrow graft information for over 200 hospitals. Access to the experience and expertise of all European teams in this field by large interconnected data base and communication systems.
Mission:	MARGRITE will link national bone marrow donor information with the European databanks for patient information (EBMT) through the use of telematics, ensuring interoperability and interconnectivity, as recommended in the G7 Global Healthcare Applications project. It will thereby help increase the number of donors and consequently the number of potential beneficiaries. Work will be based on Internet with data encrypted during transmission, and will adhere to the EU regulations on data protection and confidentiality of patient records. It is designed for use by national bone marrow databases, hospital administrators, physicians specialising in bone marrow grafting, and cancer specialists, and will function on team, national and European levels. Additional benefits include the provision of continuously updated medical records, and new access to Europe-wide population data for improved analysis of results.
URL:	www.citi2.fr/MARGRITE/margrite.html

Coordinator(s)

Mr. Norbert-Claude Gorin

EBMT

rue de l'Ecole de Medecine, 15
F-75003Paris
France tel: 33 1 40 46 95 07
fax: 33 1 40 46 96 07
ebmtcigm@worldnet.fr

url:

Participants:

Name of Institution	City+Postal Code	Country	Region
CITI2	PARIS 75006	France	FR1
FGM	PARIS Cedex 10 75475	France	FR1
EFG	PARIS 75012	France	FR1
BMDW	LEIDEN 2333AA	Netherlands	NL33

Project Objectives, Summary Description and Anticipated Results

The objective of the MARGRITE project is triple :

to establish interoperability and telematics interconnectivity between various national and international Donor Registries in the field of unrelated haematopoietic stem cell transplant in order to find, worldwide, best donor within the shortest period of time, for international patients.
to establish feasibility in the access of grafting physicians to national and European data bases concerning grafted patients, helping them to optimise therapeutic choices: grafting physicians will query the European MARGRITE data base, containing data for about 40 000 patients, which can be used to assess transplant outcome for common as well as especially rare transplant indications
to constitute a resource for planning protocols and clinical trials : examples include providing preliminary data regarding efficacy of some transplant procedures and incidences of transplant outcomes to target promising therapies for clinical testing and estimate samples of European size for specific studies.

The anticipated result is the consensus among the community of grafting physicians and related clinicians, and the Donor Registries. Therefore, a strong push of the results of the project is primarily expected in that direction, providing all the elements of the technology have been properly tested and evaluated by the users, and operational packages - be they only advanced prototypes - can be made available to the users.

It is also expected that through a snow-ball type process, the test and evaluation teams will disseminate information and know-how to their direct professional environment which in turn will do the same, fostering adhesion to the tools created by MARGRITE.

Other Characteristics of the Project:

Users involved
Grafting Physicians. Patients awaiting Bone Marrow transplantation. Administration of grafting hospital. Registries of Bone Marrow Donors.

Technologies and/or approach used
Network with 3 levels : Team, National and European level. Communications based in Internet. Data encrypted during transmission.

Expected benefits for the citizen
Permanent update and analysis of the medical dossiers. Reach the critical size population needed for meaningful analysis.

Expected benefits for the users of the application
Allows a comprehensive approach of cases. Avoids duplication of medical acts when the patient is treated by another team.

Expected benefits for the European Industries
Development of multimedia workstation. Development of imaging with fusion of different types of images.

Contribution to EU-policies
Access to European size population for analysis of multicentric results.

Validation Sites

Aritmo	Genova	Liguria	IT
SFGM	Paris	Ile de France	FR
University of Nijmege	Nijmegen	Gelderland	NL

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