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Updated: Jun 3, 97 |
SEAHORSE | |
| Support, empowerment and awareness for HIV/AIDS |
| Project Nr: | HC 1111 | Group: VI | Project Duration: 12 months |
| Key words: | HIV/AIDS ; Self-help ; Integrated Patient Records ; NGOS ; Information Quality | ||
| Category: | AIDS Telematics Applications | ||
| Summary: | Feasibility study exploring the development of a Healthcare Support Environment for People with AIDS and HIV, comprised of an interactive home support system providing information, support and access to self-help networks for users ; an integrated patient dossier for healthcare providers, and an interactive multimedia health promotion system for users of AIDS care centres. | ||
| Mission: | SEAHORSE will explore the potential of telematics to help AIDS sufferers, with an emphasis on user-friendly access to practical information for patients and those supporting them. The development of integrated patient records to improve collaboration among professional staff and a multimedia approach to AIDS/HIV-linked health promotion will be considered. The project will also study the matching between user needs and existing telematics applications, and the implications of issues such as confidentiality on care services. It will also consider networks of self-help etc. on a European scale. | ||
| URL: | tavinstitute.guinet.com/seahorse/ | ||
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| Name of Institution | City+Postal Code | Country | Region |
|---|---|---|---|
| National School of Public Health | 11521 Athens | Greece | GR3 |
| London Lighthouse | London W11 1QT | GB | UK55 |
| ECWS | 6221 Maastricht | Netherlands | NL423 |
| Intrasoft | 11525 Athens | Greece | GR3 |
| Oxford Computer Consultants | Oxford OX2 0DP | GB | UK52 |
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SEAHORSE is a feasibility study which explores the potential for harnessing developments in telematics to foster and support user empowerment through providing users in the field of HIV/AIDS with the means for more active and informed involvement with their health care. This entails providing user-friendly access to medical and other information for self-managing the illness on the one hand, and enabling house bound patients and their carers to share practical information, emotional support and common concerns on the other. It seeks to harness telematics in the development of integrated patient records as a means towards facilitating better collaboration among healthcare professionals providing home, ambulatory and clinical care. It will also explore the potential for using multimedia materials for the development of health promotion materials for AIDS/HIV. The proposal combines action research and applications development and integration activities in order to realise healthcare solutions for user groups living and working with HIV and AIDS. Its research activities will: map the needs and requirements of identified users in relation to the functionalities of existing telematics applications for healthcare; examine the implications of issues such as confidentiality and access of data and the empowerment of users for the development of healthcare provision; examine changing patterns in 'health alliances', for example the formation of direct end-user -supplier relationships, in relation to the marketisation of healthcare, and identify the pattern, spread and characteristics of self-help and other user networks for people with AIDS and HIV on a European scale. These research activities will inform the parallel and iterative development of specifications for pilot demonstrators intended to deliver telematics-based support for users. The principal demonstrator product envisaged comprises an integrated telematics-based Healthcare Support Environment (HSE) for People with AIDS and their carers.
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Users involved people living with AIDS and self-help networks; their carers (primary and specialist); agencies responsible for AIDS/HIV health promotion and disease prevention Technologies and/or approach used computer conferencing; voice-mail to experts; interactive CBT; integrated electronic patient dossier Expected benefits for the citizen increased cost-effectiveness of health service provision; improved access to and better quality of information on HIV/AIDS; transferability of applications into other health domains (long term and chronic sick; disabled) Expected benefits for the users of the application expanding and enhancing self-help networks; supporting behaviour and lifestyle appraisal and change; expanding access to services for more users; facilitating co-ordination between carers and agencies Expected benefits for the European Industries stimulating new forms of association and partnerships between users and suppliers; identifying market opportunities; specifying applications in other healthcare sectors Contribution to EU-policies identifying problems and solutions associated with transferability of concept and applications; facilitating pan-European knowledge transfer; investigating problems associated with targeting 'hard to reach' groups associated with changes in geographical and cultural boundaries; exploring marketisation of products and services via Internet |
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